I am so grateful for all the support, love and prayer. Seriously. She needs all the prayers we can send up, thank you. I will simplify mainly because there is still so many unknowns.We are seeing a Pediatric Gastroenterologist - Concerning her liver functions. On her one year heart check up a blood test indicated a possible problem. Please pray it is nothing.
Then her knees swelled and would not extend. Her hamstrings cramped up and now her back is hurting. A Pediatric Rheumatologist is joining the mix. Is is mechanical? Meaning the position of her feet, ankles, and knees are not lined up correctly. With her heart feeling better she was a lot more active, able to walk further, this activity could of started this.
Or is it more serious and long term, Arthritis?
Or is it tied back to the liver?
Pray it is NOT the second or third!! The first we can 'fix' with lots physical therapy and orthotics.
Her eyes rolling back episode on Christmas Eve was not heart related so that is a praise!! It may of been medication, dehydration, ???
To sum it up we need prayer that Isabelle has the fewest complications possible with her liver and legs as possible. That the pain will subside so she can walk upright. Now she is all hunched over and miserable, some mornings crawling. And lastly for all the poking and prodding to come on Wednesday. We need answers but getting them is hard to put her though.
She is amazing, sweet, and patient while we are scrambling to find some help. Thank you sweet friends, we should know more after Wednesday.
