Friday, August 12, 2011
Why, oh why does this day get me every time? I think it is because when you see your son in his very first football uniform you are forced to see he is growing up. It was just yesterday that Ethan was starting and now, three years later here is Jack! And I suppose in about nine years I'll be doing this all over again...
Wednesday, August 10, 2011
We went to Seattle on Monday for more testing. We did our appointments at Children's in Seattle and then we stopped for a little fun before checking into the sleep center in Bellevue. We had to rest a lot however because when you are nearly 8 months pregnant, you should not push a 110lb 14- year- old all over the place!
Dinner time.... with orange cream soda!
And then it was off to her favorite number SeVen, to slEEp!
But First they had to hook her up to every single one of these wires...
Not long and she looked like this :(
Unfortunately the nurse had to come in and UP her oxygen during the night to keep her in the high 90s oxygen wise. We are still waiting to hear back on all three tests.
Resting in the fact: God is in Control!
Saturday, August 06, 2011
Jack's baseball coach arranged the coolest thing last Friday night. Jack and his team got to go onto the field and be introduced over the microphone at the Bellingham Bells game with a Bells player. I didn't even know you could do that! It was a beautiful, summer night and a fun way to end the season. Goodbye baseball, hello football, literally the next Monday we picked up fb gear, more to come on that!
When school got out I was noticing what Isabelle had previously been able to do was now a struggle. For example, comfortably walking through the grocery store or what I call the Target test. Early in June she was asking to ride in the cart. Two weeks ago when walking from the pool to the car I turned around to check where she was and she was doubled over, struggling for breath. Ethan and I managed to get her to the car and she immediately asked for her oxygen. Bad sign, but definitely a sign of a heart issue rather than Lupus. She never asks for oxygen during the day.
So on Tuesday tests were repeated at Children's confirming her oxygen stats had plummeted. So three or four things are happening and we would love your prayers:
1. The Cardiologist (Dr. Yung) doubled her existing medication. Pray that she will not have any side effects and this will bring her back to activity!
2. We are headed to Children's again on Monday to do a CT scan of her lungs. Dr. wants to rule out Lupus attacking her lungs. My instincts tell me it is NOT this! Please Lord, not this.
3. She will also be expected to do a pulmonary function test, difficult for her to understand directions so pray she will be able to do what she needs to do.
4. Monday night we check into the Children's sleep center in Bellevue to see what is going on during the night. We might need to increase the oxygen levels at night. Praying we don't have to go to the whole C-pap contraption at night.
Thank you for praying! Isabelle is a tough cookie and nearly always has a positive attitude. She is a shining example for all of us at this house. Despite her physical circumstances she remains upbeat and spunky.